A Sanfilippo Story by Grammy L…
White-Out for Oliver
Brian reports the total amount raised for Cure Sanfilippo Foundation… almost $23,000!!!
Together, with your overwhelming help and love for Oliver to help fight Sanfilippo , we sold 370 tickets, and through the T-shirts, the happy hour, the suite participants and other extremely generous donations we raised. . .
And so, Oliver and his entire family want to send a personal ‘THANK YOU, THANK YOU, THANK YOU!’ for your unbelievable support at the Columbus Blue Jackets hockey game. Park Street Tavern was packed, the seats were packed and oh my were there so, so many people wearing white shirts out there in support for him and all of the children with Sanfilippo. It was really a special night and I know everyone had fun. Jennifer and I were so touched and we were excited to talk with as many of you as we could. We couldn’t go more than 10 feet without running into one of the supporters of Oliver’s Tomorrow.
From here, look for periodic updates on our journey with Oliver. He is cooped up here at home with us for the next several weeks (as many of you can understand and relate). So far he is successfully going through the qualifications for the clinical trial which may only be a few weeks away. We are excited and anxious for the date to get here. Indeed, these are unique times for everybody. We hope you will have a chance to meet Oliver down the road and get a chance to see how strong and quick with a smile he is. We are so proud of him.
So stay safe and healthy and enjoy everyone you are around and enjoy every single day.
Love and endless thanks,
Jennifer, Brian, Oliver and Reagan