A Sanfilippo Story by Grammy L…

Happy Birthday Love-love Boy!

Jen posted this message on the eve of Oliver’s birthday…

Tomorrow (4/2) is Oliver’s 5th birthday. I imagine I’ll be a bunch of emotions being that it will be his first birthday since his diagnosis. Prior to COVID, we had been staying away from new environments to keep Oliver as healthy as possible, so we were crawling at the walls even before this quarantine.

Oliver LOVES smiling faces, waving hello, and knowing people’s names. We have an on-going debate on whose birthday it is that starts mid-March (I say it’s my birthday right now, then he says it’s his and that mine is after his. Then we both break into song, singing happy birthday to ourselves. Then, one of us sings happy birthday to the other and vice-versa.)

If you could, I’d love to show him a bunch of videos of people singing him happy birthday. Whether you post here, tag me, or email me a link, or text me a video, it’d be such a treat for him.

Thank you for all the love ❤️

So, just saying… whether you know Ollie or not and you feel like sharing a little happy birthday song with him today, go for it! You’ll make his day, I guarantee it! If you have a Facebook account go to Jennifer Kelly’s Oliver’s Tomorrow. You can also email me at jernigal926@gmail.com and I will share it with my grandson. (I promise not to view it!)

---

So, since our family cannot physically be with Oliver today due to his upcoming trial dosage treatment and the COVID-19 shelter in place, my son, John, suggested we send our own birthday videos to Oliver. I wish I could share the one Jeff and I made… you’d get a good laugh! But alas, I cannot upload videos into my site.

Here’s the script (yes, I have taken part in the whose birthday is it game in years past…)

Here are some highlights…

Jeff’s stoic side-kick role makes me laugh! Thank goodness, I didn’t wet my pants!

---

Yes, I love Oliver! He is pure innocence and love and has no clue how Sanfilippo is compromising his life. He is more than Captain Hugs to me. He is my superhero. He inspires me to live fully and fearlessly.