A Sanfilippo Story by Grammy L…

Receiving the clinical trial gene therapy treatment means follow up tests and visits to the hospital for Oliver.

Mom writes…

Three really long days for Oliver this week. He was able to come home each evening and play and spend each night snuggled with us. He knows the hospital and let’s me know I missed the garage entrance. We have familiar faces there who know how to find Paw Patrol for him. And he’s charmed all the incredible nurses who know him from his blood draws. He says ‘thank you’ and ‘hello’ to the valets and doctors. And he still hates that bandage with the red dot, always refusing it and suggesting ‘maybe later’.

Our boy is tougher than nails and sweeter than pie!